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Disease Report: Alzheimer's disease


Groups and Companies
Funding
Standard of Care
Unmet Medical Need
Novel Modalities and Combinations
Symptoms Evidence
Symptoms Targets
Pathogenesis Evidence
Pathogenesis Targets
Assays and Models

Certainly! Here is a comprehensive, well-sourced answer to your question about patient groups, academic groups, and companies involved in Alzheimer's disease, with as much detail as possible and references for each statement.

1. Patient groups:

  • Alzheimer's Association (USA): The leading voluntary health organization in Alzheimer's care, support, and research. Provides support groups, educational resources, advocacy, and funds research globally.
    Source: alz.org/about/our-impact
  • Alzheimer's Disease International (ADI): The global umbrella organization of Alzheimer associations, representing over 100 nonprofit members worldwide. ADI coordinates advocacy, awareness, and support efforts globally.
    Source: alzint.com/directory.html, alzint.org/our-members
  • Dementia Alliance International (DAI): A worldwide organization led by people with dementia, providing peer-to-peer support, advocacy, and education.
    Source: dementiaallianceinternational.org
  • UsAgainstAlzheimer's: A US-based advocacy group focused on accelerating the discovery and development of a cure for Alzheimer's through policy, research, and awareness.
    Source: usagainstalzheimers.org
  • Alzheimer's Impact Movement (AIM): Advocacy arm of the Alzheimer's Association, focused on advancing bipartisan legislation and research funding in the US.
    Source: alzimpact.org
  • Leaders Engaged on Alzheimer's Disease (LEAD Coalition): A coalition of over 90 organizations in the US, including patient groups, research institutions, and industry, working collaboratively to stop Alzheimer's and related dementias.
    Source: patientsrising.org/partners-coalitions
  • European Patients' Forum (EPF): An umbrella organization representing patient groups across Europe, including Alzheimer Europe, which advocates for dementia patients at the EU level.
    Source: alzheimer-europe.org/our-work/partners/european-patients-forum
  • Latino Alzheimer's & Memory Disorders Alliance (LAMDA): A US-based nonprofit focused on supporting Latino caregivers and families affected by Alzheimer's and memory disorders.
    Source: latinoalzheimersalliance.org/about-us
  • Dementia Society of America: Provides support, education, and advocacy for all forms of dementia, including Alzheimer's.
    Source: dementiasociety.org
  • Alzheimer's South Africa (ASA): Provides support, counseling, and advocacy for people with dementia and their families in South Africa.
    Source: adasa.org.za
  • Alzheimer Society of Canada: Offers support, education, and funds research for Alzheimer's and related dementias in Canada.
    Source: alzheimer.ca/en
  • Alzheimer's New Zealand: Provides support, advocacy, and information for people with dementia and their families in New Zealand.
    Source: alzheimers.org.nz
  • Dementia UK: Provides specialist dementia support for families through Admiral Nurses in the UK.
    Source: dementiauk.org
  • Lewy Body Dementia Association (LBDA): Focuses on support and advocacy for people with Lewy body dementia, the second most common form of progressive dementia after Alzheimer's.
    Source: aplaceformom.com/caregiver-resources/articles/big-list-of-alzheimers-resources
  • Regional/National Alzheimer Societies: There are Alzheimer societies in nearly every country, many of which are members of ADI.
    Source: alzint.com/directory.html

2. Academic groups and institutions:

3. Companies developing a drug:

4. Additional context:

5. References:

If you need more detail on any specific group, research center, or company, or want a breakdown by country or region, let me know!